Up next: Orencia

So, I have been avoiding the topic as much as I can, but it's arthritis time. I've been in a pretty bad flare for the past month-plus. I don't have the energy to go into detail about all of that--you can browse through the archives if you're curious as to what that's like.

I've also been waiting to get approved for a new treatment. First, my doctor's office took their sweet time to get the approval process going. Apparently there is one single person in the whole rheumatology operation at my hospital who is capable of doing this. And she was out of the office for a few weeks, so it took about a month just to get this going; after she came back, I had to chase her down because no one was calling me (as promised), and then had some trouble getting my calls returned (I can only imagine how swamped she was if she's the only person handling this type of thing), which added another two weeks or so.

On Thursday, I had to leave work early because the pain was so bad. On Friday, I was barely able to walk in the morning, and spent most of the day laying in bed. Apparently some time Thursday afternoon, the Girl From Rheumatology (sounds like "Girl From Ipanema" in my head) called letting me know that I'd been approved and the OIC (Oncology and Infusion Center) would be calling me to make an appointment. OIC called twice on Friday, of course, and I didn't even notice it, what with being in a pain-induced haze most of the day--not that I'd be able to do anything about it, since I couldn't hold a phone or dial during business hours.

I returned their call today morning, and got bitched at for not answering.

You'd think that people dealing with patients suffering from cancer and other diseases disruptive enough that require, you know, poison to be pumped directly into their veins in order to function would be a little more understanding.

I would like to take this moment to deeply and sincerely apologize to every receptionist whose appointment-scheduling has been ever-so-slightly disrupted by my inability to overcome the agonizing pain that keeps me pinned to the bed so I can sprightly hop on over to the phone and answer by the second ring. I have been truly selfish and thoughtless.

After sheepishly taking my well-deserved talking-to by the OIC Star Scheduler, she informed me that since I hadn't called them back until today--and really, this is my fault, I should've had the oversight to add more business days in between Friday and Monday--, she had gone ahead and scheduled me for an infusion. On the eleventh. That is, the day after tomorrow.

I'm lucky enough to have understanding bosses and to work for a fairly nice company. I shudder to think of what happens to the other poor bastards with this disease when they suddenly have to block out three to four hours in the middle of the week in the middle of a workday on two days' notice.

One last, additional problem with this whole thing: this week, of all times, my rheumatologist is out on vacation. She had mentioned she wanted me to dose up on prednisone before the infusion, but I don't have the exact dose or instructions. OIC was unable to provide me with any special instructions from my doc; her office is consulting the on-call doctor. Additionally, there may be other stuff (more meds plus observation), since I had a nasty allergic reaction to an infusion in the past. Hopefully she wrote this down some place accessible to the other people in her office.

I'm pretty freaked out and not too happy at this point. Will write more later about the medication itself and some of the things that are freaking me out about that.